We got to talk in depth with the 'fellow' that is here this month. It was so great to talk to him. During rounds, they always go through Molly's long list of medical problems, all of them since birth. It's hard to hear sometimes. She has or has had osteopenia (brittle bones), bronchopulmonary dysplasia (chronic lung disease), ROP that has resolved, thrombocytopenia, anemia, liver disease/failure, big open PDA, necrotizing enterocolitis, cholestatis, and some more I know I am forgetting. The fellow whose name is JB thoughtfully sat us down to break it all down for us. He said it all boils down to her liver and her lungs. The liver disease is the cause of her retaining fluid, low platelet count, lethargy, brittle bones, and most of her problems actually. Once her liver starts to heal and regenerate, all of the other things will resolve. Of course we all know about her lungs. While they are not as bad as they can be, they are pretty bad. Time and nutrition are the two things that will heal the liver and lungs. And patience for Mommy and Daddy.
In other news, they tried to take her broviac out yesterday. Since it has been in for 4 months, it has been engrained into her and hard to remove. The surgeon is going to come by again today to try and remove it bedside and if they can't get it out they will take her to the OR.
I have some prayer requests to all those praying for our sweet baby girl. Please pray that she tolerates her feeds. Please pray that her liver and lungs heal. Please pray for protection for Molly's brain. Please pray they can successfully remove her broviac. Thank you!
The picture attached is of the bruising around Molly's broviac after they unsuccessfully tried to remove it yesterday.
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