So, Molly never got her broviac removed. Her blood clotting factors were not where they wanted them. But, we did move to the PICU. I think it has been a good move so far. She has seen sooooo many doctors. The plan has changed a little bit in regards to her surgeries. Her liver is very bad. Molly's skin is almost orange, ever her tears are orange. This is because of her liver. We have heard the terms liver failure, liver disease and liver dysfunction. They have started on a couple of different medicines to help her body do what the liver is supposed to be doing. One of those things is to rid the body of toxins. One of those toxins is ammonia. When the liver cannot rid the body of ammonia, one of the side effects is agitation and sleepiness. Molly is exhibiting both of those things. Thankfully one of the meds she is getting rids the body of the ammonia and that level has been coming down. Over the past couple of days she has been more awake and alert. Today though, she was awake for several hours. Tim and I got to play with her. She was tracking things as we moved them In front of her. Her nurse even put her in a bouncy seat. That was the first time ever. We hope to get her out of her bed and into the seat everyday.
So, the plan is as follows. Tomorrow at 11:15am Molly is going to the OR for her broviac removal, liver biopsy, and g-tube placement. The tracheostomy is on hold until her liver issues can be figured out. The liver biopsy will be able to tell them the cause of her liver dysfunction. Hopefully. I personally think it's a combination of the prolonged use of TPN and the CMV. But what do I know, I'm just her momma.
We have heard that it could be 3 weeks before her trach. That could of course change. But at least we have some sort of idea.
Lots of pictures! Her move to the PICU, her new room, Molly in her bouncy seat.
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