Since Molly's PDA closure, not much has changed in the respiratory department. We have other developments though. One interesting fact we found out is that her PDA was as large as her aorta. That's a substantial PDA. According to one of the doctors, a PDA this size could not have been one that closed and reopened. So, logic would dictate that her PDA has been open for the past 5.5 months.
Anyway, about these new developments. Since Molly got to children's, she has not been the same. She is very lethargic and she has swelled up. She has gained 2.5 pounds in fluid alone. Not only that, her liver and spleen are very enlarged. I asked the attending doctor how concerned he was about her liver. His answer was "very concerned". So, it doesn't look like we will just be at children's for her to be evaluated for a trach and g-tube unfortunately. She has many other things that they are concerned about. She has brittle bones and the liver and spleen enlargements. These could be attributed to her prolonged use of TPN (IV nutrition). Also, her abdomen is distended so she is off feeds. The plan right now is to check out her liver more in depth. They are going to run a whole slew of tests on her liver. They sent out blood cultures for any infection. And, they are checking to see if her CMV has flared up. If so, this could be the cause of her liver acting up as well. Tim and I think she for sure has an infection. This is how Molly usually reacts when she does...lethargic and fluid retention. It's tough to see her go from our Molly, eyes wide open looking around. Right now, she never opens her eyes and can barely tolerate being touched. It makes Momma very sad and extremely worried.
In other news, they believe that Molly was suffering from fentanyl withdrawals. So, she is now on methadone.
No comments:
Post a Comment