What a week, what a week! Molly had her surgeries on Thursday, the same day she turned 6 months old. The surgeon said she was a challenge. He also said her liver was very large and even hard. Despite all that, he was able to get the liver biopsy and put the g-tube in. And they removed her broviac. All good news. Molly has done fantastic post-surgery. She has not required any pain meds or sedation. We have one tough little cookie on our hands! They have started using the g-tube already. That's how she gets her meds. They also started her on pedialyte yesterday. She threw up a bit this morning. So, they are backing up a little on the volume. Molly's motto is slow and steady wins the race. The doctors like to get to the finish line as soon as they can. Molly lets them know what's up though.
In other news, they have been weaning her vent settings all the time. She had one of the best blood gases we have seen in quite some time. pH was 7.4 and co2 was 47. So, her vent settings are currently at pressure control of 22 (down from 23), peep of 7 (down from 8), and backup rate of 20 (down from 28). Oxygen is currently at 30% and she is satting at 97. I know some of you don't know what I am talking about. Just know that this is good! She has been "riding the vent" when she is in a deep sleep. This means she lets the vent do all of her breathing. But she is asleep right now and breathing on her own. She is a brave sweet girl, and she is doing awesome.
One more piece of good news. We got preliminary results from the liver biopsy. Basically they are trying to find the reason for her liver dysfunction....be it TPN, CMV, or any genetic issues. The prelim results show that it is TPN induced cholestasis. There is no sign of cirrhosis. This means that the liver damage is reversible. This is GREAT news! Thanks to everyone for all their thoughts and prayers. They are working wonders!
Pictures from the week!
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