Molly is holding steady. She is off the epinephrine, still paralyzed though. She has so much fluid on her - about 4 pounds worth. It may not sound like a lot for you and me, but for a baby, it's a lot. What happens with Molly is that when she has this fluid overload, it disperses everywhere. This includes her lungs, her belly size, even the lining of her intestines. So, they have her on a lasix drip to help her pee it off. Because her belly is so distended (her girth should be about 45cm and is currently 54cm) and her lungs are wet, her respiratory status has gotten worse. They have had to increase the support she needs. Oh yeah, she is on nitric oxide as well at 20ppm. This is used to treat pulmonary hypertension (PH). In order to wean her off the nitric, they have started her on a new med to treat the PH. This med is sildenefil, also known as viagra. So, hopefully they can start to wean the nitric soon.
Now, onto the big topic of omegaven. I have all the wheels in motion for the transfer to Houston, except for one. On Monday, we got a new attending physician. He is not quite on board with transferring her. He wants to learn more about omegaven, which I understand. But time is of the essence. I learned earlier that the new attending GI doctor is in talks with the short gut head honcho doctor. He wants to get omegaven here. So, we will see what transpires this afternoon hopefully. I am still doing what I can to get her to Houston in the mean time.
Nicole was able to come stay from Saturday until yesterday (Tuesday). That was great and much needed on my part. Mom and Tim's parents came by as well this past weekend. I know they all miss seeing Molly.
I guess that is all I have for now. Now, a few pictures...
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